Balin's Story
Jenna Beck
This video is a story about my son Balin (Bay-lin).
Balin was born with a rare genetic disorder called "Pierre Robin Sequence/ Syndrome". The aim of this presentation is raise awareness for PRS but also to inspire families of children with this and other life threatening conditions. Time is fleeting. Nothing stays the same. A hard day today, could be a monumentus day tomorrow. Dont give up. Reach out. Find the help you need and hold tight to your loved ones for tomorrows another day.
Thanks for watching.
Mick
(Balins Dad)